Strategic Learning for Health Care in 2010 — The engaged patient… clinicians/researchers *need* to engage!

If all of this sounds scary, remember your oncology training: denial, anger, bargaining, acceptance.

Scary? My data? This is normal, every day internet use, especially compared to what they were about to hear from Gilles Frydman of ACOR.org, Simone Sommer and Josh Sommer of the Chordoma Foundation, and Jamie Heywood of PatientsLikeMe.com. Patients telling each other where to go for treatment, tracking drug side effects for post-marketing surveillance, owning their own data, refuting their doctors’ advice, raising money to direct their own experiments. They are the radicals, the superheroes, the wild-eyed optimists who believe they can transform medicine from the bottom up.

Great stuff… as I mentioned in a post yesterday… you (as physicians) may not want to engage patients online— but imagine how medicine would change if we were online and engaged in dialogue for the same purpose…after all—

WE ARE ALL PATIENTS.

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About hjluks

A busy Academic Orthopedic Surgeon, Digital Strategist, Chief Medical Officer and father... intently and efficiently navigating the intersection of Social Media and Health Care.
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2 Responses to Strategic Learning for Health Care in 2010 — The engaged patient… clinicians/researchers *need* to engage!

  1. Chukwuma Onyeije says:

    It would appear that many physicians currently view empowered patients as some kind of pathology and they are clearly in the denial (“oh, come on, how many patients are doing this stuff”) and anger (“can you believe she came to my office with some printout from the internet…”) phases of Kubler-Ross.Luckily, folks like Gilles, Jamie and Josh are providing strong medicine to overcome such misgivings. But I agree with you, Howard. If we as physicians are going to overcome the “pathology” of empowered patients, then we should treat ourselves by adopting the tools that groups like ACOR and patientslikeme have already seized to become part of the conversation.

  2. nanarcr says:

    I’m no longer terrified to print out, ask questions, and even sometimes correct a physician. I smile and say “I only have ONE patient.” And one life.Please engage me. If you don’t, perhaps the next physician will.”Nothing about us without us.”

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